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Open Opportunities

Fundraising Lead

Reporting to: Chair of SEDSConnective 

Salary: £28-35,000 per annum (depending on experience) 

Hours: 20 hour working week or 40 hour working week

Place of work: Remote 

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We’re on the lookout for an inspiring and driven Fundraising Lead to collaborate with our passionate board of Trustees and Advisors. This vital role is all about creating and delivering dynamic fundraising initiatives to fuel SEDSConnective’s life-changing mission

Volunteer HR Recruitment and Onboarding Administrator 

We are seeking a dedicated, organised HR Recruitment & Onboarding Administrator to support our expanding volunteer team. This is a key role in helping us grow sustainably while ensuring new volunteers feel welcomed and supported. 

Volunteer Website Administrator (Wix) 

We're after someone who knows Wix (in a drag and drop form only) or has used many 'build a website' platforms so that they can easily get use Wix and edit our current pages and content. We will help you on-board and connect you with our other volunteers so don't worry. We're all voluntary but helping save lives. This is an ongoing role. 

Volunteer Marketing Manager 

The Marketing Manager at SEDSConnective plays a crucial role in raising awareness, engaging the community and promoting our mission to support individuals with symptomatic hypermobility (EDS HSD), neurodivergent conditions (Autism, ADHD, Dyspraxia, Tourette's, Dyslexia, and more) and associated conditions. The Marketing Manager will develop and implement strategic marketing initiatives to enhance the charity’s visibility, support fundraising efforts, and engage key stakeholders. This volunteer role requires creativity, digital proficiency and strong communication skills to drive impactful campaigns and advocacy efforts. 

Volunteering Roles

We are very lucky to have a team of wonderful volunteers!

And we are always looking for more voluntary support.  We are extremely grateful to anyone who wishes to support us, especially those who are empathic to our characteristics. We do not limit who can apply! 

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We are always looking for people who can support us with:

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  • Website Management, Some design, Content Support & Administration

  • Graphic designer to join the team

  • Educators, teaching experience welcomed

  • Trainers with experience or advocates willing to learn

  • IT Support microsoft 

  • Digitial support 

  • Online Webinar Administration & Support x 3 

  • Content Creation, Writing content or copywriting (flexible) 

  • Community engagement volunteer

  • Social Media Management, Content & Design on Xitter, Facebook, Instagram, Linkedin, tiktok

  • Community advocate for stakeholders

  • PR Support & Contacts

  • Marketing 

  • Legal employment support 

  • Fundraising Support & Administration organisers to join the team

  • Activity Coordinators & Administration

  • Video Editors - adhoc 

  • Animation & Design Work

  • Physiotherapy 

  • Health Practitioners

  • Teachers, Edu.psychs, Educationalists

  • School nurses

  • Politicians

  • Celebrities or changemakers to advocate for our vision

  • Donor advocates 

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All SEDSConnective roles are flexible to you and the time you can give us. 

We will be fully supportive, offer relevant training and work with you to grow and develop the role for the good of you and our charity. 

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If you would like to volunteer for SEDSConnective, or would like any more information on any of our volunteer roles please get in touch, even if you cant find a role that suits.

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Let's Connect

Address: Planet House,

North Heath Lane Industrial Estate, Horsham,

West Sussex RH12 5QE

Phone: 07376 973 688

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general@sedsconnective.org

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Registered Charity No: 1199724

Registered Scotland No: SC054110

Scottish Charity Regulator
Charity Commission England and Wales.

Legal Stuff

Cookie Policy
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Safeguarding Policy

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©2025 by SEDSConnective 

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