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Red, White and Blue are my digits you know? February is Raynaud’s Awareness month

Writer's picture: Jane Green MBEJane Green MBE

Do your fingers get frozen quickly? Do you find you have to warn people before they offer to shake your hands. Are your feet like blocks of ice? Are they painful and tingly?


You might not of heard of the actual name for these symptoms but this could be Raynaud’s Phenomenon. If you have certain health conditions like Ehlers-Danlos syndromes (EDS) or Hypermobility Spectrum Disorders (HSD) which are connective tissue disorders, or as often not formally diagnosed the term used is symptomatic hypermobility, these may seem very familiar symptoms to you.   There are also associated conditions to EDS and HSD like Postural Tachycardia (POTS) fibromyalgia, IBS or  M.E/Chronic Fatigue syndrome which can co-occur with Raynaud’s Phenomenon.   Primary Raynaud’s occurs without an underlying condition or disease . We find Raynaud’s phenomenon often occurs with our members at SEDSConnective.org  due to the other previous diagnoses or conditions mentioned before.   Raynaud’s Phenomenon can often be more severe and it is commonly found to run in families so whole families might think it is just their ‘normal’ for them.


Cold temperatures are key, but also some think that Raynaud’s Phenomenon might be related to stress or anxiety either within the person or the environment, hormones and/or medications. This may be because the blood vessels narrow and spasm, stopping blood flow to fingers or toes and it can affect the ears and nose ! It can also be an underlying issue with other autoimmune diseases like Lupus, Rheumatoid arthritis or scleroderma. Some of our members may also have crossovers with autoimmune conditions. If you want to know more do follow us.


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We are the leading neurodivergent and symptomatic hypermobility charity.  We support those with or without a formal diagnosis of Autism, ADHD, dyspraxia, TS, dyslexia or dyscalculia. We also support those with or without a formal Ehlers-Danlos or Hypermobillity Spectrum Disorder. Also associated conditions like dysautonomia, POTS OI, MCAS, Gastrointestinal issues, fatigue, pain  along with their families, carers, friends and allied professionals.

Address: Planet House, North Heath Lane Industrial Estate, Horsham, West Sussex, RH12 5QE

Phone: 07376 973 688

Registered Charity No: 1199724

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