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Partner Organisations & Charities

Writer's picture: Jane Green MBEJane Green MBE

SEDS is linking with medical practitioners, clinical commissioning groups, sustainable transformation partnerships, education organisations, universities and transport organisations (including trains, ferries, airports and airlines). We are lucky to have some amazing organisations, charities and leading research universities we either participate or partner with in Sussex and nationally.


Latest - Proud to have SEDS mentioned in a leading research charity Versus Arthritis talking about the long journey to get a diagnosis of EDS/HSD. How she battled with many injuries and illnesses and losing her career.




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We are the leading neurodivergent and symptomatic hypermobility charity.  We support those with or without a formal diagnosis of Autism, ADHD, dyspraxia, TS, dyslexia or dyscalculia. We also support those with or without a formal Ehlers-Danlos or Hypermobillity Spectrum Disorder. Also associated conditions like dysautonomia, POTS OI, MCAS, Gastrointestinal issues, fatigue, pain  along with their families, carers, friends and allied professionals.

Address: Planet House, North Heath Lane Industrial Estate, Horsham, West Sussex, RH12 5QE

Phone: 07376 973 688

Registered Charity No: 1199724

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