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X-ORIGINAL-URL:https://sedsconnective.org
X-WR-CALDESC:Events for SEDSConnective
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DTSTART:20210101T000000
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BEGIN:VEVENT
DTSTART;TZID=UTC:20251202T213000
DTEND;TZID=UTC:20251202T223000
DTSTAMP:20260316T180308Z
CREATED:20200909T030226Z
LAST-MODIFIED:20260316T180308Z
UID:2058-1764711000-1764714600@sedsconnective.org
SUMMARY:SEDSConnective & Dr Zac Spiritos - Gut Hypermobility Issues
DESCRIPTION:We are pleased to announce an online webinar with our Patron\, Dr Zac Spiritos\, exploring the relationship between gut hypermobility issues\, mast cell activation syndrome (MCAS)\, and their impact on connective tissues. \nThis session will be led by Dr Zac Spiritos\, a specialist neurogastroenterologist with expertise in complex gastrointestinal conditions often associated with hypermobility syndromes such as EDS and HSD. The talk will explore how gut function\, connective tissue differences\, and mast cell activity can interact\, and how these processes may affect symptoms experienced by many people living with hypermobility. \nDon’t miss this opportunity to learn an expert dedicated to this field and connect with others who share similar experiences. See you there! Recordings will only go out to those register.
URL:https://sedsconnective.org/event/provide-pure-water-and-fresh-food-for-syrian/
LOCATION:Virtual Event
CATEGORIES:Therapeutic & Health-Focused
ATTACH;FMTTYPE=image/png:https://sedsconnective.org/wp-content/uploads/2020/09/xac.png
ORGANIZER;CN="SEDSConnective":MAILTO:general@sedsconnective.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20251128T110000
DTEND;TZID=UTC:20251128T123000
DTSTAMP:20260316T180845Z
CREATED:20200909T030219Z
LAST-MODIFIED:20260316T180845Z
UID:2052-1764327600-1764333000@sedsconnective.org
SUMMARY:Brighton & Hove Members Meet Ups
DESCRIPTION:The Brighton and Hove SEDSConnective meet up and drop in dates for 2025 are here. \nAll meetings take place at the Jubilee Library in Brighton. We will be in the Community Area at the back of the library. \nEveryone is very welcome to attend. These gatherings offer a relaxed and friendly opportunity to spend time with other members of the SEDSConnective community\, share experiences\, and enjoy being part of a supportive space. \nIf you have any questions\, please feel free to get in touch with Kelly at kelly@sedsconnective.org. \nWe look forward to seeing you soon.
URL:https://sedsconnective.org/event/lights-of-love-holiday-donation-campaign/
LOCATION:Jubilee Street Venue – Brighton and Hove\, Jubilee St\, Brighton and Hove\, East Sussex\, BN1 1GE\, United Kingdom
CATEGORIES:Support & Social Meetups
ATTACH;FMTTYPE=image/png:https://sedsconnective.org/wp-content/uploads/2020/09/Brighton-Meetup.png
ORGANIZER;CN="SEDSConnective":MAILTO:general@sedsconnective.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20251110T090000
DTEND;TZID=UTC:20251110T163000
DTSTAMP:20260316T185855Z
CREATED:20260316T181554Z
LAST-MODIFIED:20260316T185855Z
UID:25881-1762765200-1762792200@sedsconnective.org
SUMMARY:CYPF Annual Conference 2025 - Beyond the Label: Getting It Right for Neurodivergent Young People
DESCRIPTION:Our chair Jane Green MBE will be presenting in a panel with Dr Anita Marsden\, Jennifer Law\, Emmie Fisher and Dr Sarah Glew on education\, neurodivergent children\, school attendance\, avoidance and support. \nOrganised by the BPS Division of Clinical Psychology – Faculty for Children\, Young People and their Families\, this one-day\, in-person conference explores how we understand\, support\, and stand alongside neurodivergent children and young people (CYP) in a world still catching up with what it truly means to support neurodivergent lives in context. \n\nThe conference theme is Beyond the Label\, reflecting our commitment to: \n\nSeeing the child and young person\, not just the diagnosis.\nListening to unheard voices.\nMoving beyond narrow clinical categories toward more relational\, inclusive\, and culturally aware approaches.\n\n\nThis event is for those working with children\, young people and their families who are: \n\nPsychologists\, counsellors\, psychotherapists\, psychiatrists\, and other allied professionals.\nAcademics\, researchers\, and students in psychology\, education\, or related disciplines.\nTrainees and early career professionals in clinical\, counselling forensic\, and educational contexts.\nLived experience advocates and community partners working with CYP.\nCommissioners\, policy-makers\, and those shaping services and systems of support.\n\nWe especially encourage attendance from those with an interest in neurodivergence\, education\, justice\, inclusion\, mental health\, and systems change. \n\nToo often\, neurodivergent young people find themselves navigating systems that were not designed with their full diversity of needs and experiences in mind. This conference brings together practitioners\, researchers\, and people with lived experience to challenge diagnostic silos\, reframe risk\, and explore culturally responsive\, creative\, and meaningful ways of working.We’ll ask questions like: \n\nWhat happens when neurodivergence is missed or misunderstood in forensic or care settings?\nHow do cultural narratives and stigma shape parental engagement and access to services?\nWhat does trauma look like for neurodivergent young people?\nHow can we support emotional safety and connection in those who are ‘out of school’ or ‘hard to reach’?\nWhere are the opportunities for real innovation – and are we ready to take them?\n\n\n\n\nRegister: https://www.bps.org.uk/event/cypf-annual-conference-2025-beyond-label-getting-it-right-neurodivergent-young-people
URL:https://sedsconnective.org/event/cypf-annual-conference-2025-beyond-the-label-getting-it-right-for-neurodivergent-young-people/
LOCATION:Tabernacle Street Venue – London\, 30 Tabernacle St\, London\, Greater London\, EC2A 4UE\, United Kingdom
CATEGORIES:Conferences & Summits
ATTACH;FMTTYPE=image/png:https://sedsconnective.org/wp-content/uploads/2026/03/bps.png
ORGANIZER;CN="SEDSConnective":MAILTO:general@sedsconnective.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20251101T100000
DTEND;TZID=UTC:20251101T183000
DTSTAMP:20260316T185741Z
CREATED:20260316T185741Z
LAST-MODIFIED:20260316T185741Z
UID:25923-1761991200-1762021800@sedsconnective.org
SUMMARY:Seed Talks Presents - The ADHD & Women Summit
DESCRIPTION:Please join our chair Jane Green MBE and many others at the ADHD Women Summit on November 1st. \nJane will be speaking on body brains burnout – Your Body is Talking But Can You Hear It?  \nResearch shows that in childhood\, boys are diagnosed with ADHD 3-4 times more than girls. By adulthood\, the ratio evens out to nearly 1:1 highlighting how girls and women with ADHD are often misdiagnosed and misunderstood in the medical framework. \nWith increased diagnoses and growing strains on the NHS and other support services\, the ADHD & Women Summit aims to increase awareness and knowledge on the specific issues women with ADHD face. \nLearn about ADHD and the distinct ways women experience it from leading experts at this groundbreaking conference.
URL:https://sedsconnective.org/event/seed-talks-presents-the-adhd-women-summit/
LOCATION:The Fireworks Factory – Royal Arsenal\, London\, 11 No 1 St\, Royal Arsenal\, London\, Greater London\, SE18 6HD\, United Kingdom
CATEGORIES:Conferences & Summits
ATTACH;FMTTYPE=image/png:https://sedsconnective.org/wp-content/uploads/2026/03/adgh-1.png
ORGANIZER;CN="SEDSConnective":MAILTO:general@sedsconnective.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20251101T090000
DTEND;TZID=UTC:20251101T180000
DTSTAMP:20260316T185922Z
CREATED:20260316T184618Z
LAST-MODIFIED:20260316T185922Z
UID:25908-1761987600-1762020000@sedsconnective.org
SUMMARY:EDS ECHO Summit: Mental Health
DESCRIPTION:The Ehlers-Danlos Society is delighted to welcome you to register for the EDS ECHO Summit: Mental Health\, a virtual event held on November 1\, 2025. This event is suitable for community members\, their friends\, families\, and caregivers\, as well as healthcare professionals. \nThis event will feature presentations\, case studies\, and panel discussions around the latest management and care strategies\, featuring presentations on the following topics: \n\nThe Mind/Body Connection\nCoping with a Diagnosis\nIntersectionality\nNeurodivergence\nPractical Management Strategies\n\n\nThis event is virtual and will be hosted via Zoom webinar\, attendees are welcome to join from anywhere in the world. Please use worldtimebuddy.com to find the event time in your location. \nIf you have any questions\, please contact our events team. \n\n\n\nReal-time translation into 60+ languages \nWordly will be available during the event\, allowing you to listen in your preferred language. Wordly’s AI-powered translation ensures everyone can engage and learn seamlessly\, with real-time translation of over 60 languages available.
URL:https://sedsconnective.org/event/eds-echo-summit-mental-health/
LOCATION:Virtual Event
CATEGORIES:Conferences & Summits
ATTACH;FMTTYPE=image/avif:https://sedsconnective.org/wp-content/uploads/2026/03/eds.avif
ORGANIZER;CN="SEDSConnective":MAILTO:general@sedsconnective.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250724T190000
DTEND;TZID=UTC:20250724T203000
DTSTAMP:20260320T110701Z
CREATED:20260316T190524Z
LAST-MODIFIED:20260320T110701Z
UID:25928-1753383600-1753389000@sedsconnective.org
SUMMARY:Surrey/Sussex Support Meeting
DESCRIPTION:We are pleased to invite you to join our Community Chat Meeting\, a relaxed and informal space for conversation\, connection\, and shared understanding. \nOpen to people living with hypermobility and related conditions (including EDS\, HSD and pGJH) as well as those who identify as neurodivergent (including ADHD\, autism\, dyspraxia\, dyslexia\, dyscalculia and more). Parents\, carers\, friends\, and anyone interested in learning more are also very welcome. \nYou do not need a diagnosis to attend. Many people come along simply to meet others with similar experiences\, ask questions\, or spend time in a supportive and understanding community environment. \nThe aim of the meeting is to provide a friendly and accessible space where people can connect\, share experiences\, and support one another. \nNo tickets are required — you are very welcome to simply come along. \nFor further information please contact: general@sedsconnective.org
URL:https://sedsconnective.org/event/surrey-sussex-support-meeting/
LOCATION:Healthy Farm – Crawley\, Balcombe Rd\, Crawley\, West Sussex\, RH10 3NQ\, United Kingdom
CATEGORIES:Support & Social Meetups
ATTACH;FMTTYPE=image/png:https://sedsconnective.org/wp-content/uploads/2026/03/ss.png
ORGANIZER;CN="SEDSConnective":MAILTO:general@sedsconnective.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250711T083000
DTEND;TZID=UTC:20250711T180000
DTSTAMP:20260316T191505Z
CREATED:20260316T191505Z
LAST-MODIFIED:20260316T191505Z
UID:25934-1752222600-1752256800@sedsconnective.org
SUMMARY:The invisible impact of COVID-19 on hypermobility syndromes and neurodivergence - bodies\, brains and burnout
DESCRIPTION:Join us for an in-depth exploration of the links between Generalised Joint Hypermobility (GJH)\, hypermobility Ehlers-Danlos Syndromes (hEDS) and the closely related Hypermobility Spectrum Disorders (HSD)\, with post-COVID health complications\, henceforth described as hypermobility. We will explore the concept of “Bendy-Brain”\, linking Hypermobility with multi-organ involvement (gastrointestinal\, genitourinary\, cardiovascular\, autonomic nervous system\, neurodivergence\, and brain) in susceptible patients. \nWe will learn about the genetics\, immunology\, and cytokine cascades\, MCAS\, and resulting dysregulation of the autonomic nervous system\, GI tract\, and multiple organs. The impact and importance of co-occurring neurodivergent conditions is also discussed and the wider implications for health and education.  \nWe learn how to treat the histamine overload and dysautonomia and the resulting escalation of chronic fatigue and pain/fibromyalgia with new treatments. We also look at spike protein retention and how this might be the ultimate trigger. We will explore recent research on the origins and exacerbation of these widespread\, persistent health issues\, alongside potential solutions to restore patients’ well-being. \nCOVID-19 has disproportionately impacted patients with hypermobility conditions. hEDS / HSD is a heritable connective tissue disorder with weakened proteins like collagen found throughout the body. We ascertain that around 20% of the UK population\, 14 million people\, are susceptible to injury or illness due to having symptomatic hypermobility. \nRecent studies show that those with GJH as a risk factor and already with it are 30% less likely to recover from COVID-19 infection. Post-COVID\, we can still see the ongoing ‘fall out’ of hypermobile and neurodivergent patients. Particularly young\, working-age people are rendered disabled and more women are affected than men. \nThis is a must-attend event for medical professionals\, researchers\, policy makers\, educators\, and patient advocates seeking to enhance their understanding of hypermobility and its complex interplay with post-COVID conditions. Attendees will gain valuable insights into early diagnosis\, specialist care\, and targeted interventions such as neuromodulation for fibromyalgia and chronic pain. The programme will also cover emerging therapies\, lifestyle interventions\, and the latest advancements in personalised patient management. Don’t miss this opportunity to stay ahead in the field and contribute to the ongoing dialogue on improving care for those with Hypermobility. \n\nBook Tickets via The Royal Society of Medicine’s website: https://www.rsm.ac.uk/events/rheumatology-and-rehabilitation/2024-25/rrt02/
URL:https://sedsconnective.org/event/the-invisible-impact-of-covid-19-on-hypermobility-syndromes-and-neurodivergence-bodies-brains-and-burnout/
LOCATION:The Wimpole Street – London\, 1 Wimpole St\, London\, Greater London\, W1G 0AE\, United Kingdom
CATEGORIES:Therapeutic & Health-Focused
ATTACH;FMTTYPE=image/png:https://sedsconnective.org/wp-content/uploads/2026/03/covid.png
ORGANIZER;CN="SEDSConnective":MAILTO:general@sedsconnective.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250613T090000
DTEND;TZID=UTC:20250613T170000
DTSTAMP:20260317T195512Z
CREATED:20260317T195512Z
LAST-MODIFIED:20260317T195512Z
UID:25959-1749805200-1749834000@sedsconnective.org
SUMMARY:Joint RCPsych/RCGP Neurodevelopmental SIG Event 2025 Programme
DESCRIPTION:Innovating Together for the Future – Fresh Perspectives on Neurodevelopment\, is this years’ Royal College of Psychiatrists Neurodevelopmental Psychiatry Special Interest Group Summer Conference\, which has been jointly developed with the Royal College of General Practitioners Special Interest Group. The online-only event will be held on Friday 13 June 2025\, and features a wide range of speakers\, spanning psychiatry\, general practice\, and academic medicine. Please join us where we will be discussing current research and clinical practice relating to neurodevelopment\, as well as focusing on future directions.  \n\nThis event will be taking place online via a platform called EventsAir. Registered participants will receive their link to join the conference in their joining instructions. Joining instructions will be sent out in the days before the conference is due to take place.  \n\nAudience & fee types \nThis event is primarily targeted toward psychiatrists and GPs\, but it is also open to other non-psychiatric medical professionals and allied health professionals (AHP). \nDiscounted rate is available for allied healthcare professional: \n\nNurses\nOccupational Therapists\nPsychologists\nPhysiotherapists\nNutritionists\n\nThe AHP fee type does not apply to GPs. GPs should select the ‘Non-member and GPs’ fee type. \nIf you are unsure about which rate applies to you\, please contact Miriam Muleba at miriam.muleba@rcpsych.ac.uk.  \n\n\n\n\nHow to register for the event \n\nSee the full programme here\nFor more information on the event please visit the website\nOr register online here\n\n\n\n\n\n 
URL:https://sedsconnective.org/event/joint-rcpsych-rcgp-neurodevelopmental-sig-event-2025-programme/
LOCATION:Virtual Event
CATEGORIES:Research & Scientific Events
ATTACH;FMTTYPE=image/png:https://sedsconnective.org/wp-content/uploads/2026/03/rcp.png
ORGANIZER;CN="SEDSConnective":MAILTO:general@sedsconnective.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250522T190000
DTEND;TZID=UTC:20250522T203000
DTSTAMP:20260317T212301Z
CREATED:20260317T212301Z
LAST-MODIFIED:20260317T212301Z
UID:25966-1747940400-1747945800@sedsconnective.org
SUMMARY:Surrey/Sussex Support Meeting
DESCRIPTION:We are pleased to invite you to join our Community Chat Meeting\, a relaxed and informal space for conversation\, connection\, and shared understanding. \nThis local\, user-led gathering is open to people living with hypermobility and related conditions (including EDS\, HSD and pGJH) as well as those who identify as neurodivergent (including ADHD\, autism\, dyspraxia\, dyslexia\, dyscalculia and more). Parents\, carers\, friends\, and anyone interested in learning more are also very welcome. \nYou do not need a diagnosis to attend. Many people come along simply to meet others with similar experiences\, ask questions\, or spend time in a supportive and understanding community environment. \nThe aim of the meeting is to provide a friendly and accessible space where people can connect\, share experiences\, and support one another. \nNo tickets are required — you are very welcome to simply come along. \nFor further information please contact: general@sedsconnective.org
URL:https://sedsconnective.org/event/surrey-sussex-support-meeting-2/
LOCATION:Healthy Farm – Crawley\, Balcombe Rd\, Crawley\, West Sussex\, RH10 3NQ\, United Kingdom
CATEGORIES:Support & Social Meetups
ATTACH;FMTTYPE=image/png:https://sedsconnective.org/wp-content/uploads/2026/03/s-s.png
ORGANIZER;CN="SEDSConnective":MAILTO:general@sedsconnective.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250424T190000
DTEND;TZID=UTC:20250424T203000
DTSTAMP:20260317T212751Z
CREATED:20260317T212751Z
LAST-MODIFIED:20260317T212751Z
UID:25970-1745521200-1745526600@sedsconnective.org
SUMMARY:Surrey/Sussex Support Meeting
DESCRIPTION:We are pleased to invite you to join our Community Chat Meeting\, a relaxed and informal space for conversation\, connection\, and shared understanding. \nThis local\, user-led gathering is open to people living with hypermobility and related conditions (including EDS\, HSD and pGJH) as well as those who identify as neurodivergent (including ADHD\, autism\, dyspraxia\, dyslexia\, dyscalculia and more). Parents\, carers\, friends\, and anyone interested in learning more are also very welcome. \nYou do not need a diagnosis to attend. Many people come along simply to meet others with similar experiences\, ask questions\, or spend time in a supportive and understanding community environment. \nThe aim of the meeting is to provide a friendly and accessible space where people can connect\, share experiences\, and support one another. \nNo tickets are required — you are very welcome to simply come along. \nFor further information please contact: general@sedsconnective.org
URL:https://sedsconnective.org/event/surrey-sussex-support-meeting-3/
LOCATION:Healthy Farm – Crawley\, Balcombe Rd\, Crawley\, West Sussex\, RH10 3NQ\, United Kingdom
CATEGORIES:Support & Social Meetups
ATTACH;FMTTYPE=image/png:https://sedsconnective.org/wp-content/uploads/2026/03/sussex-surrey-24-april.png
ORGANIZER;CN="SEDSConnective":MAILTO:general@sedsconnective.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250311T103000
DTEND;TZID=UTC:20250311T143000
DTSTAMP:20260317T213300Z
CREATED:20260317T213300Z
LAST-MODIFIED:20260317T213300Z
UID:25974-1741689000-1741703400@sedsconnective.org
SUMMARY:Neurodivergence Day with SEDSConnective
DESCRIPTION:Join us in the Jubilee Library foyer as we celebrate Neurodivergence Day! Led by some of our volunteers from SEDSConnective\, this is a great opportunity to learn about neurodivergence\, hypermobility\, and their connection to conditions like Ehlers-Danlos syndromes (EDS). \nNeurodivergence means having a brain that processes\, learns\, and behaves differently. Research suggests that our connective tissues may also be different\, impacting both body and brain. Despite this\, the connection has been overlooked in healthcare\, education\, and daily life—something SEDSConnective is working hard to change. \n\nHow can you help? \n\nVisit our stand\, ask questions\, and show your support\nDonate to help us continue our advocacy and research\nGo multicoloured to represent ADHD\, Autism\, Dyspraxia\, Dyslexia\, Tourette’s\, Hypermobile EDS\, POTS\, MCAS\, and more\nShare your photos and experiences online to help raise awareness for SEDSConnective 🦓♾️\n\n✨ Keep a lookout! Our friends over at Brighton Pier will be turning the lights multicoloured in celebration of Neurodivergence Day! 🌈
URL:https://sedsconnective.org/event/neurodivergence-day-with-sedsconnective/
LOCATION:Jubilee Street Venue – Brighton and Hove\, Jubilee St\, Brighton and Hove\, East Sussex\, BN1 1GE\, United Kingdom
CATEGORIES:Support & Social Meetups
ATTACH;FMTTYPE=image/png:https://sedsconnective.org/wp-content/uploads/2026/03/neurodivergence-day-11-may.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250211T190000
DTEND;TZID=UTC:20250211T203000
DTSTAMP:20260320T112452Z
CREATED:20260320T110847Z
LAST-MODIFIED:20260320T112452Z
UID:26359-1739300400-1739305800@sedsconnective.org
SUMMARY:Surrey/Sussex Borders Support Meeting
DESCRIPTION:We are pleased to invite you to join our Community Support Meeting. Join us for the first monthly regular meetings with Anna. \nOpen to people living with hypermobility and related conditions (including EDS\, HSD and pGJH) as well as those who identify as neurodivergent (including ADHD\, autism\, dyspraxia\, dyslexia\, dyscalculia and more). Parents\, carers\, friends\, and anyone interested in learning more are also very welcome. \nYou do not need a diagnosis to attend. Many people come along simply to meet others with similar experiences\, ask questions\, or spend time in a supportive and understanding community environment. \nThe aim of the meeting is to provide a friendly and accessible space where people can connect\, share experiences\, and support one another. \nNo tickets are required — you are very welcome to simply come along. \nFor further information please contact: general@sedsconnective.org
URL:https://sedsconnective.org/event/surrey-sussex-support-meeting-4/
LOCATION:Balcombe Rd Venue – Crawley\, Balcombe Rd\, Crawley\, West Sussex\, RH10 3NQ\, United Kingdom
CATEGORIES:Support & Social Meetups
ATTACH;FMTTYPE=image/png:https://sedsconnective.org/wp-content/uploads/2026/03/s-s-borders.png
ORGANIZER;CN="SEDSConnective":MAILTO:general@sedsconnective.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250206T191500
DTEND;TZID=UTC:20250206T203000
DTSTAMP:20260320T114056Z
CREATED:20260320T112835Z
LAST-MODIFIED:20260320T114056Z
UID:26365-1738869300-1738873800@sedsconnective.org
SUMMARY:Tricky Veins and Needle Phobia - What you need to know with Dr Rabenstein
DESCRIPTION:We are pleased to announce a webinar with Dr Rabenstein\, who has spent the majority of his career working as an NHS Hospital Anaesthetist and brings extensive experience in anaesthesia and sedation. \nDr Rabenstein also runs a private practice providing intravenous conscious sedation\, supporting patients who may otherwise be unable to access necessary dental treatment or who are undergoing particularly long or complex procedures. His professional background includes being a Fellow of the Irish College of Anaesthetists\, a member of the Royal College of Anaesthetists\, and a former council member of the Association of Dental Anaesthetists and Sedationists (ADAS). \nThis webinar will offer insight into sedation and anaesthesia in more complex or sensitive cases\, helping to improve understanding for patients\, carers\, and professionals. The session aims to provide clear\, accessible information to support informed discussions about care options and patient experiences. \nSEDSConnective is a user-led community charity\, and we are pleased to offer this webinar free of charge. As a voluntary organisation\, we welcome optional donations (suggested £5) to help support our ongoing work. \nThank you for your support.
URL:https://sedsconnective.org/event/tricky-veins-and-needle-phobia-what-you-need-to-know-with-dr-rabenstein/
LOCATION:Virtual Event
CATEGORIES:Workshops & Courses
ATTACH;FMTTYPE=image/png:https://sedsconnective.org/wp-content/uploads/2026/03/tricky-veins.png
ORGANIZER;CN="SEDSConnective":MAILTO:general@sedsconnective.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20241211T193000
DTEND;TZID=UTC:20241211T203000
DTSTAMP:20260320T113958Z
CREATED:20260320T113617Z
LAST-MODIFIED:20260320T113958Z
UID:26375-1733945400-1733949000@sedsconnective.org
SUMMARY:SEDSConnective Weekly Wednesday Webinar
DESCRIPTION:Join us for our Member’s Weekly Wednesday Webinar! \nIt’s a great chance for members to relax amongst friends\, share experiences\, ask questions\, or simply grab a coffee and listen in. \nSimply RSVP to get a link in your email\, don’t forget to Check your Junk or Spam folder if you don’t find it in your emails. \nThis event is members only\, but it’s free to join (https://www.sedsconnective.org/membership).
URL:https://sedsconnective.org/event/sedsconnective-weekly-wednesday-webinar-2/
LOCATION:Virtual Event
CATEGORIES:Webinars & Online Talks
ATTACH;FMTTYPE=image/png:https://sedsconnective.org/wp-content/uploads/2026/03/seds-web-webinar.png
ORGANIZER;CN="SEDSConnective":MAILTO:general@sedsconnective.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20241204T193000
DTEND;TZID=UTC:20241204T203000
DTSTAMP:20260320T114048Z
CREATED:20260320T113448Z
LAST-MODIFIED:20260320T114048Z
UID:26371-1733340600-1733344200@sedsconnective.org
SUMMARY:SEDSConnective Weekly Wednesday Webinar
DESCRIPTION:Join us for our Member’s Weekly Wednesday Webinar! \nIt’s a great chance for members to relax amongst friends\, share experiences\, ask questions\, or simply grab a coffee and listen in. \nSimply RSVP to get a link in your email\, don’t forget to Check your Junk or Spam folder if you don’t find it in your emails. \nThis event is members only\, but it’s free to join (https://www.sedsconnective.org/membership).
URL:https://sedsconnective.org/event/sedsconnective-weekly-wednesday-webinar/
LOCATION:Virtual Event
CATEGORIES:Webinars & Online Talks
ATTACH;FMTTYPE=image/png:https://sedsconnective.org/wp-content/uploads/2026/03/seds-web-webinar.png
ORGANIZER;CN="SEDSConnective":MAILTO:general@sedsconnective.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20241129T110000
DTEND;TZID=UTC:20241129T123000
DTSTAMP:20260316T180153Z
CREATED:20200909T030225Z
LAST-MODIFIED:20260316T180153Z
UID:2057-1732878000-1732883400@sedsconnective.org
SUMMARY:Brighton & Hove Members Meet Ups
DESCRIPTION:The Brighton and Hove SEDSConnective meet up and drop in dates for 2024 are here. \nAll meetings take place at the Jubilee Library in Brighton. We will be in the Community Area at the back of the library. \nEveryone is very welcome to attend. These gatherings offer a relaxed and friendly opportunity to spend time with other members of the SEDSConnective community\, share experiences\, and enjoy being part of a supportive space. \nIf you have any questions\, please feel free to get in touch with Kelly at kelly@sedsconnective.org. \nWe look forward to seeing you soon.
URL:https://sedsconnective.org/event/provide-pure-water-and-fresh-food-fo/
LOCATION:Jubilee Street Venue – Brighton and Hove\, Jubilee St\, Brighton and Hove\, East Sussex\, BN1 1GE\, United Kingdom
CATEGORIES:Support & Social Meetups
ATTACH;FMTTYPE=image/png:https://sedsconnective.org/wp-content/uploads/2020/09/Brighton-Meetup.png
ORGANIZER;CN="SEDSConnective":MAILTO:general@sedsconnective.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20241127T193000
DTEND;TZID=UTC:20241127T203000
DTSTAMP:20260320T114148Z
CREATED:20260320T113948Z
LAST-MODIFIED:20260320T114148Z
UID:26377-1732735800-1732739400@sedsconnective.org
SUMMARY:SEDSConnective Weekly Wednesday Webinar
DESCRIPTION:Join us for our Member’s Weekly Wednesday Webinar! \nThis week we’ll be chatting about routes to diagnosis for those with hypermobility issues. \nIt’s a great chance for members to relax amongst friends\, share experiences\, ask questions\, or simply grab a coffee and listen in. \nSimply RSVP to get a link in your email\, don’t forget to Check your Junk or Spam folder if you don’t find it in your emails. \nThis event is members only\, but it’s free to join (https://www.sedsconnective.org/membership).
URL:https://sedsconnective.org/event/sedsconnective-weekly-wednesday-webinar-3/
LOCATION:Virtual Event
CATEGORIES:Webinars & Online Talks
ATTACH;FMTTYPE=image/png:https://sedsconnective.org/wp-content/uploads/2026/03/seds-web-webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20241120T193000
DTEND;TZID=UTC:20241120T203000
DTSTAMP:20260320T114414Z
CREATED:20260320T114414Z
LAST-MODIFIED:20260320T114414Z
UID:26381-1732131000-1732134600@sedsconnective.org
SUMMARY:SEDSConnective Weekly Wednesday Webinar
DESCRIPTION:Join us for our Member’s Weekly Wednesday Webinar! \nTo launch our regular series of Weekly Wednesday Webinars\, we are excited to have our founder Jane Green MBE joining us to talk about the work of SEDSConnective and how the charity helps its members. \nIt’s a great chance for members to relax amongst friends\, share experiences\, ask questions\, or simply grab a coffee and listen in. \nSimply RSVP to get a link in your email\, don’t forget to Check your Junk or Spam folder if you don’t find it in your emails. \nThis event is members only\, but it’s free to join (https://www.sedsconnective.org/membership).
URL:https://sedsconnective.org/event/sedsconnective-weekly-wednesday-webinar-4/
LOCATION:Virtual Event
CATEGORIES:Webinars & Online Talks
ATTACH;FMTTYPE=image/png:https://sedsconnective.org/wp-content/uploads/2026/03/seds-web-webinar.png
ORGANIZER;CN="SEDSConnective":MAILTO:general@sedsconnective.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240929T110000
DTEND;TZID=UTC:20240929T123000
DTSTAMP:20260323T103821Z
CREATED:20260323T103810Z
LAST-MODIFIED:20260323T103821Z
UID:26499-1727607600-1727613000@sedsconnective.org
SUMMARY:Brighton and Hove Members Meetups
DESCRIPTION:Join us at the Jubilee Library in Brighton on Friday 29 September at 11am for our next monthly SEDSConnective meet up session. Biscuits will be provided! \nEveryone is very welcome to attend. These gatherings offer a relaxed and friendly opportunity to spend time with other members of the SEDSConnective community\, share experiences\, and enjoy being part of a supportive space. \nIf you have any questions\, please feel free to get in touch with Kelly at kelly@sedsconnective.org. \nWe look forward to seeing you soon.
URL:https://sedsconnective.org/event/brighton-and-hove-members-meetup/
LOCATION:Jubilee Street Venue – Brighton and Hove\, Jubilee St\, Brighton and Hove\, East Sussex\, BN1 1GE\, United Kingdom
CATEGORIES:Support & Social Meetups
ATTACH;FMTTYPE=image/png:https://sedsconnective.org/wp-content/uploads/2026/03/brighton-hove-members.png
ORGANIZER;CN="SEDSConnective":MAILTO:general@sedsconnective.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240830T110000
DTEND;TZID=UTC:20240830T130000
DTSTAMP:20260320T130836Z
CREATED:20260320T125607Z
LAST-MODIFIED:20260320T130836Z
UID:26384-1725015600-1725022800@sedsconnective.org
SUMMARY:Brighton & Hove Support and Chat Meeting
DESCRIPTION:We are pleased to invite you to our Support Chat Meeting\, a friendly and inclusive space for conversation\, connection\, and shared understanding. \nThis informal gathering is open to people with or without a diagnosis\, as well as carers\, friends\, and anyone supporting someone with related conditions. As a user-led voluntary charity\, we aim to create a welcoming environment where everyone feels comfortable to attend\, whether you are new or already part of the community. \nYou do not need to be a member to join us\, although becoming a member will help you stay connected with future events and updates. \nThe venue offers a café on site\, or you are very welcome to bring your own food and drinks. The space has gentle lighting and is designed to be accessible and comfortable for all attendees. \nThe aim of the meeting is to provide a relaxed\, supportive setting where people can chat openly\, share experiences\, and feel part of a community. \nYou are very welcome to come along.
URL:https://sedsconnective.org/event/brighton-hove-support-and-chat-meeting/
LOCATION:Jubilee Street Venue – Brighton and Hove\, Jubilee St\, Brighton and Hove\, East Sussex\, BN1 1GE\, United Kingdom
CATEGORIES:Support & Social Meetups
ATTACH;FMTTYPE=image/png:https://sedsconnective.org/wp-content/uploads/2026/03/brighton-hove-support-chat.png
ORGANIZER;CN="SEDSConnective":MAILTO:general@sedsconnective.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240708T130000
DTEND;TZID=UTC:20240708T133000
DTSTAMP:20260320T125944Z
CREATED:20260320T125944Z
LAST-MODIFIED:20260320T125944Z
UID:26388-1720443600-1720445400@sedsconnective.org
SUMMARY:Seated Mobilates - Online
DESCRIPTION:We are pleased to offer our free online Mobilates classes exclusively for SEDSConnective members. \nThese sessions have been made possible thanks to the generosity and efforts of our volunteer fundraisers\, allowing us to provide accessible\, supportive movement sessions at no cost to members. \nEach class lasts approximately 30 minutes\, with additional optional time afterwards for relaxation and informal chat\, creating a gentle and flexible environment to suit individual needs. \nMembers are welcome to attend in a way that works best for them. If you are unable to take part in the exercises on a particular day\, you are very welcome to join online to watch or take part in the discussion instead. There is no expectation to attend every session. \nThe aim of these classes is to provide a supportive\, low-pressure space for movement\, wellbeing\, and connection within the community. \nMembers will be sent an online registration form to join the sessions. If you require any support\, please contact: mpr@sedsconnective.org \nThank you.
URL:https://sedsconnective.org/event/seated-mobilates-online/
LOCATION:Virtual Event
CATEGORIES:Webinars & Online Talks
ATTACH;FMTTYPE=image/png:https://sedsconnective.org/wp-content/uploads/2026/03/mobiltes.png
ORGANIZER;CN="SEDSConnective":MAILTO:general@sedsconnective.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240607T133000
DTEND;TZID=UTC:20240607T150000
DTSTAMP:20260320T130828Z
CREATED:20260320T130436Z
LAST-MODIFIED:20260320T130828Z
UID:26392-1717767000-1717772400@sedsconnective.org
SUMMARY:SEDSConnective Crawley Community Meeting
DESCRIPTION:We are pleased to invite you to our regular Crawley community meetings\, offering a relaxed and welcoming space to connect with others. \nThese sessions are designed to be flexible and informal — you are welcome to arrive and leave at any time\, with no obligation to stay for the full duration. You do not need to be a member to attend\, and everyone is warmly welcome. \nTea and coffee are provided\, creating a comfortable environment for conversation and connection. The venue is centrally located in Crawley town centre\, with easy access for attendees. \nThe aim of these meetings is to provide a friendly\, supportive space where people can meet\, share experiences\, and feel part of a community. \nFor further information\, please contact: general@sedsconnective.org \nWe look forward to welcoming you.
URL:https://sedsconnective.org/event/sedsconnective-crawley-community-meeting/
LOCATION:Queens Square – Crawley\, 12 Queens Square\, Crawley\, West Sussex\, RH10 1HG\, United Kingdom
CATEGORIES:Support & Social Meetups
ATTACH;FMTTYPE=image/png:https://sedsconnective.org/wp-content/uploads/2026/03/time-to-meet-up.png
ORGANIZER;CN="SEDSConnective":MAILTO:general@sedsconnective.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240530T194500
DTEND;TZID=UTC:20240530T210000
DTSTAMP:20260320T130751Z
CREATED:20260320T130751Z
LAST-MODIFIED:20260320T130751Z
UID:26396-1717098300-1717102800@sedsconnective.org
SUMMARY:Weekly Thursday Online Talks
DESCRIPTION:Weekly online meetings with Jane Green of SEDSConnective. New topic each week and the occasional Guest Speaker. Members only. Register now to reserve your spot. 
URL:https://sedsconnective.org/event/weekly-thursday-online-talks/
LOCATION:Virtual Event
CATEGORIES:Webinars & Online Talks
ATTACH;FMTTYPE=image/png:https://sedsconnective.org/wp-content/uploads/2026/03/weekly-thursday-talks.png
ORGANIZER;CN="SEDSConnective":MAILTO:general@sedsconnective.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240519T153000
DTEND;TZID=UTC:20240519T173000
DTSTAMP:20260316T185049Z
CREATED:20260316T185049Z
LAST-MODIFIED:20260316T185049Z
UID:25912-1716132600-1716139800@sedsconnective.org
SUMMARY:Connections between Hypermobility and long Covid
DESCRIPTION:Join Dr Jessica Eccles\, Patron of SEDSConnective\, for an exclusive talk exploring the latest research on the connections between long COVID and hypermobility. This year’s large study\, published in BMJHealth and highlighted by national media\, will be explained in detail\, providing valuable insights for our community. \nDr Eccles is a Consultant Psychiatrist in the Neurodevelopmental Service at Sussex Partnership NHS Foundation Trust. She trained at the University of Cambridge and Oxford\, completed integrated academic training in Psychiatry at Brighton and Sussex Medical School (BSMS)\, and holds an MRC Clinical Research Training Fellowship. She is now a Reader in Brain-Body Medicine at BSMS\, leading award-winning research linking physical differences to mental and physical health\, with a particular focus on neurodivergence. \nThis webinar is free for SEDSConnective members. We encourage a voluntary donation of £5 or equivalent to support our charity and enable us to continue hosting these important talks. Donations can be made via the Donate button.
URL:https://sedsconnective.org/event/connections-between-hypermobility-and-long-covid/
LOCATION:Virtual Event
ATTACH;FMTTYPE=image/webp:https://sedsconnective.org/wp-content/uploads/2026/03/covid.webp
ORGANIZER;CN="SEDSConnective":MAILTO:general@sedsconnective.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240516T194500
DTEND;TZID=UTC:20240516T214500
DTSTAMP:20260316T180840Z
CREATED:20200909T030221Z
LAST-MODIFIED:20260316T180840Z
UID:2055-1715888700-1715895900@sedsconnective.org
SUMMARY:Education Issues & Attendance Talk
DESCRIPTION:Join Jane Green\, Chair and Founder\, for an online talk on education issues and school attendance. This session is hosted exclusively for SEDSConnective members and will explore challenges that many neurodivergent and hypermobile young people face in education\, as well as approaches that may help families navigate attendance and support needs. \nThe event will take place online via Zoom. After registering\, you will receive the link to join the session. \nIf you experience any technical difficulties\, please email mpr@sedsconnective.org.
URL:https://sedsconnective.org/event/help-charities-without-leaving-home/
LOCATION:Virtual Event
CATEGORIES:Therapeutic & Health-Focused
ATTACH;FMTTYPE=image/avif:https://sedsconnective.org/wp-content/uploads/2020/09/Jane-Green.avif
ORGANIZER;CN="SEDSConnective":MAILTO:general@sedsconnective.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240509T123000
DTEND;TZID=UTC:20240509T133000
DTSTAMP:20260323T102205Z
CREATED:20260323T102151Z
LAST-MODIFIED:20260323T102205Z
UID:26494-1715257800-1715261400@sedsconnective.org
SUMMARY:Rhythms Drumming of the Earth
DESCRIPTION:We are pleased to invite you to join us for an outdoor drumming session. \nThe session will take place on Thursday 9th May\, with attendees asked to meet at reception from 12:00pm. We will begin moving to the drumming area at 12:15pm\, ready for a 12:30pm start. If you are running late\, please do get in touch so we can assist you. \nFollowing the session\, there will be an opportunity to stay for a coffee and informal chat\, or you are welcome to bring your own snacks and drinks to enjoy. \nLet’s hope for good weather as this is outdoors. \nIf you would like to attend\, please contact general@sedsconnective.org with “Drumming” in the subject line by 8th May.
URL:https://sedsconnective.org/event/rhythms-drumming-of-the-earth/
LOCATION:Selsfield – Haywards Heath\, Selsfield Rd\, Haywards Heath\, West Sussex\, RH17 6TN\, United Kingdom
CATEGORIES:Arts, Activities & Leisure
ATTACH;FMTTYPE=image/png:https://sedsconnective.org/wp-content/uploads/2026/03/drums.png
ORGANIZER;CN="SEDSConnective":MAILTO:general@sedsconnective.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20230706T110000
DTEND;TZID=UTC:20230706T120000
DTSTAMP:20260323T104225Z
CREATED:20260323T104157Z
LAST-MODIFIED:20260323T104225Z
UID:26504-1688641200-1688644800@sedsconnective.org
SUMMARY:Wakehurst Place Botanical Gardens Walk or Wheel
DESCRIPTION:Join us at 11am on Thursday 6th July 2023 for a walk or wheel (depending on mobility) through the beautiful gardens at Wakehurst Place Botanical Gardens in Haywards Heath.  \nEntrance is FREE as we have arranged for a group pass for SEDSConnective members. \nYou will need to register with us if you are not already a member to be able to join us.  \nAccessibility information about Wakhurst including scooter bookings which must be done in advance can be found here \nIf you are planning on bringing your dog with you\, please read the following information before hand here \nWe look forward to seeing you there!
URL:https://sedsconnective.org/event/wakehurst-place-botanical-gardens-walk-or-wheel/
LOCATION:Wakehurst Place Botanical Gardens – Haywards Heath\, Selsfield Rd\, Haywards Heath\, West Sussex\, RH17 6TN\, United Kingdom
CATEGORIES:Arts, Activities & Leisure
ATTACH;FMTTYPE=image/png:https://sedsconnective.org/wp-content/uploads/2026/03/wakehurst-botanical.png
ORGANIZER;CN="SEDSConnective":MAILTO:general@sedsconnective.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20230630T110000
DTEND;TZID=UTC:20230630T123000
DTSTAMP:20260323T104602Z
CREATED:20260323T104602Z
LAST-MODIFIED:20260323T104602Z
UID:26508-1688122800-1688128200@sedsconnective.org
SUMMARY:Brighton and Hove Members Meetups
DESCRIPTION:All meetings take place at the Jubilee Library in Brighton. We will be in the Community Area at the back of the library. \nEveryone is very welcome to attend. These gatherings offer a relaxed and friendly opportunity to spend time with other members of the SEDSConnective community\, share experiences\, and enjoy being part of a supportive space. \nIf you have any questions\, please feel free to get in touch with Kelly at kelly@sedsconnective.org. \nWe look forward to seeing you soon.
URL:https://sedsconnective.org/event/brighton-and-hove-members-meetups/
LOCATION:Jubilee Street Venue – Brighton and Hove\, Jubilee St\, Brighton and Hove\, East Sussex\, BN1 1GE\, United Kingdom
CATEGORIES:Support & Social Meetups
ATTACH;FMTTYPE=image/png:https://sedsconnective.org/wp-content/uploads/2026/03/brighton-hove-members.png
ORGANIZER;CN="SEDSConnective":MAILTO:general@sedsconnective.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20230605T114000
DTEND;TZID=UTC:20230605T124500
DTSTAMP:20260323T104922Z
CREATED:20260323T104922Z
LAST-MODIFIED:20260323T104922Z
UID:26512-1685965200-1685969100@sedsconnective.org
SUMMARY:Wakehurst Walk or Wheel
DESCRIPTION:This visit is free\, courtesy of SEDSConnective.  \nYou are welcome to bring a carer\, partner or children\, but you will need to be responsible for any minors you bring.  \nTo register\, please email Kelly Harris at kelly@sedsconnective.org \nWe will walk/wheel on wheelchair and mobility scooter friendly pathways. \nIf you need to rent a mobility scooter\, they have a limited number available at Wakehurst which you must pre-book with them directly. \nWe look forward to seeing you there!
URL:https://sedsconnective.org/event/wakehurst-walk-or-wheel/
LOCATION:Selsfield – Haywards Heath\, Selsfield Rd\, Haywards Heath\, West Sussex\, RH17 6TN\, United Kingdom
CATEGORIES:Arts, Activities & Leisure
ATTACH;FMTTYPE=image/png:https://sedsconnective.org/wp-content/uploads/2026/03/wakehurst-walk-or-wheel.png
ORGANIZER;CN="SEDSConnective":MAILTO:general@sedsconnective.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20221108T194500
DTEND;TZID=UTC:20221108T204500
DTSTAMP:20260316T184235Z
CREATED:20260316T184112Z
LAST-MODIFIED:20260316T184235Z
UID:25903-1667936700-1667940300@sedsconnective.org
SUMMARY:Swimming Club
DESCRIPTION:Dive in at your pace! Confident swimmers are invited to arrive poolside at 19:45. If you prefer a gentler start with your toes touching the floor\, come at 20:00. \nOur sessions are friendly\, inclusive\, and non-competitive\, open to adults 18 and over of all abilities\, including those with disabilities. Carers are warmly welcome. \nThis is more than just a swim. It is an opportunity to build confidence\, improve wellbeing\, and connect with a supportive community in a safe and encouraging environment. Whether you are here for fitness\, fun\, or relaxation\, you will feel right at home in the water.
URL:https://sedsconnective.org/event/swimming-club/
LOCATION:Leisure Centre – Crawley\, K2 Leisure Centre\, Crawley\, West Sussex\, RH11 9BQ\, United Kingdom
CATEGORIES:Arts, Activities & Leisure
ATTACH;FMTTYPE=image/avif:https://sedsconnective.org/wp-content/uploads/2026/03/Swimming-club.avif
ORGANIZER;CN="SEDSConnective":MAILTO:general@sedsconnective.org
END:VEVENT
END:VCALENDAR