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Research- Largest Global study hEDS HSD (hypermobility)
A groundbreaking international survey sheds light on the hidden struggles of thousands living with hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorders
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Aug 9, 20255 min read


Connective Bodies/Brains - Hypermobility EDS,JH and Neurodivergence (Autism ADHD +)
Emerging research is revealing strong links between neurodivergent conditions such as Autism, ADHD, Dyspraxia, Tourette's dyslexia and physical traits like joint hypermobility, Ehlers–Danlos syndromes and other connective tissue differences.
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Aug 9, 20251 min read


Understanding the Connection Between Dysphagia, EDS, and Hypermobility Disorders
Dysphagia is where you have problems swallowing.
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Aug 3, 20252 min read


Oh my GERD or GORD!
It’s one of the more common digestive disorders seen with symptomatic hypermobility GERD GORD
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Aug 3, 20252 min read


It’s Not Just in Your Head...hidden stuggles of neurodivegent health (hypermobilty)
'groundbreaking era of neuroscience'
'masking pain invalidates your self worth'
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Jun 7, 20252 min read


Tourette's helped me embrace the unknowns of chronic illness- hypermobility & Neurodivergence
As a child, my tics and Tourettic Obsessive Compulsive Disorder (OCD) were so severe that I spent four years unable to dress myself and had no free time to do anything fun
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May 31, 20253 min read


'You don't know what you don't know'
We may all be “experts” in our own experiences, but memory is fallible, and our recollections can be shaped by emotions, biases, and the
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Feb 26, 20252 min read


Health challenges with hypermobility, Autism ADHD x 4
As a family we don’t fit neatly into boxes. Our bodies and our brains are different.
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Oct 31, 20242 min read


Rejection Sensory Dysphoria ?
The chances I had to have a relationship have been few and far between and because I push people away.
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Sep 22, 20242 min read
Masking my Pain with alcohol
by Gale (43) from Gloucestershire Gale TRIGGER WARNING: Alcohol Addiction. I believe I am neurodivergent. In reading about hypermobility...
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May 31, 20243 min read


Why does it matter? Traumatisation of patients by some clinicians
Warning: mentions suicidal / trauma In case you missed this paper (below) it is about traumatisation of people with hypermobility...
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May 26, 20242 min read


"Walking the path of thorns" along with hypermobility EDS and dyslexia
by Solomon Ballin, Age 27 I was diagnosed with dyslexia at 12 years old, it is said that I could also have other neurodivergence...
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Apr 30, 20242 min read


I am MORE than my history- Eating issues or not?
Having a history of any illness is hard, but when trying to advocate that your symptoms are not due to your history is even harder....
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Jun 28, 20233 min read


WorldMenopauseDay 18th October- The doctors said I was normal range- but my body had had enough: Red ants were the final straw
The doctors said I was normal range- but my body had had enough
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Oct 18, 20222 min read
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