Blog

3 days ago3 min read

A hypermobility Neurodivegent DK graphic

'You don't know what you don't know'

We may all be “experts” in our own experiences, but memory is fallible, and our recollections can be shaped by emotions, biases, and the

Feb 262 min read

Oh my GERD or GORD!

GORD—or, GERD—depending on your location, which stands for gastro-oesophageal reflux disease. Whatever you call it, it’s when acid and...

Nov 24, 20242 min read

Health challenges with hypermobility, Autism ADHD x 4

As a family we don’t fit neatly into boxes. Our bodies and our brains are different.

Oct 31, 20242 min read

Autism, Anxiety and interoception

I was often told 'it was all in my head'

Oct 12, 20243 min read

What is Dysautonomia?

It is a malfunction of the Autonomic Nervous System - there are 3 systems ...

Oct 9, 20241 min read

What is Inclusion week? Why does it matter ?

We ask to be heard, included and coproduce initiatives in all areas with equality and equity.

Sep 25, 20242 min read

Rejection Sensory Dysphoria ?

The chances I had to have a relationship have been few and far between and because I push people away.

Sep 22, 20242 min read

What is Gastroparesis?

For the worst days, foods that will move with gravity, like shakes or liquids are generally going to be the best option.

Masking my Pain with alcohol

by Gale (43) from Gloucestershire TRIGGER WARNING: Alcohol Addiction. I believe I am neurodivergent. In reading about hypermobility...

Stories

May 31, 20243 min read

Member in the news- Severe migraines and chronic illness

Natasha Green a member of SEDSConnective talks about severe migraines and how chronic illness has been a huge part of her life. She...

Apr 20, 20241 min read

Crossing Borders, Connecting Worlds: My Journey with Neurodivergence and Connective Tissue Disorders

Dr Kana Grace, PhD Neurodivergent neurodivergence advocate and researcher Okinawa, Japan @kanabaletti https://linktr.ee/kanagrace...

Dec 29, 20232 min read

What is MCAS? "When mast cells flare the ‘storm’ gathers pace"

These are our ‘allergy’ cells, and the first responders to

May 12, 20233 min read

WorldMenopauseDay 18th October- The doctors said I was normal range- but my body had had enough: Red ants were the final straw

The doctors said I was normal range- but my body had had enough

Stories

Oct 18, 20222 min read

My reasons to create the school toolkit for hypermobiity.

I did this voluntarily as I firmly believed children and young people, education staff needed this now and for future generations

neurodivergence

May 27, 20227 min read

Freezing from the inside out!

Core body temperature is usually around 36-38°c. Medication, weather can affect body temperature, as can other hormones, allergies or...