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'You don't know what you don't know'
We may all be “experts” in our own experiences, but memory is fallible, and our recollections can be shaped by emotions, biases, and the
SEDSConnective
Feb 262 min read
141
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RSD: The Invisible Pain of Rejection Sensitive Dysphoria
Do your emotions hit like a tidal wave? Have you ever felt an overwhelming emotional response so intense that it physically hurts? A...
Jane Green MBE
Feb 162 min read
359
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Red, White and Blue are my digits you know? February is Raynaud’s Awareness month
Do your fingers get frozen quickly? Do you find you have to warn people before they offer to shake your hands. Are your feet like blocks...
SEDSConnective
Jan 312 min read
203
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Health challenges with hypermobility, Autism ADHD x 4
As a family we don’t fit neatly into boxes. Our bodies and our brains are different.
Jane Green MBE
Oct 31, 20242 min read
388
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Autism, Anxiety and interoception
I was often told 'it was all in my head'
Jane Green MBE
Oct 12, 20243 min read
728
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What is Inclusion week? Why does it matter ?
We ask to be heard, included and coproduce initiatives in all areas with equality and equity.
SEDSConnective
Sep 25, 20242 min read
26
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Rejection Sensory Dysphoria ?
The chances I had to have a relationship have been few and far between and because I push people away.
SEDSConnective
Sep 22, 20242 min read
232
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What is Gastroparesis?
For the worst days, foods that will move with gravity, like shakes or liquids are generally going to be the best option.
SEDSConnective
Jul 31, 20242 min read
434
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Masking my Pain with alcohol
by Gale (43) from Gloucestershire TRIGGER WARNING: Alcohol Addiction. I believe I am neurodivergent. In reading about hypermobility...
Jane Green MBE
May 31, 20243 min read
189
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Why does it matter? Traumatisation of patients by some clinicians
Warning: mentions suicidal / trauma In case you missed this paper (below) it is about traumatisation of people with hypermobility...
Jane Green MBE
May 26, 20242 min read
344
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"Walking the path of thorns" along with hypermobility EDS and dyslexia
by Solomon Ballin, Age 27 I was diagnosed with dyslexia at 12 years old, it is said that I could also have other neurodivergence...
Jane Green MBE
Apr 30, 20242 min read
200
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Member in the news- Severe migraines and chronic illness
Natasha Green a member of SEDSConnective talks about severe migraines and how chronic illness has been a huge part of her life. She...
Jane Green MBE
Apr 20, 20241 min read
100
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Press Release - SEDSConnective Celebrates #NeurodivergenceDay on 11th March
SEDSConnective launched #NeurodivergenceDay on 11th March 2024. www.SEDSConnective.org/neurodivergenceday
SEDSConnective
Mar 11, 20242 min read
31
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What is MCAS? "When mast cells flare the ‘storm’ gathers pace"
These are our ‘allergy’ cells, and the first responders to
Jane Green MBE
May 12, 20233 min read
370
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WorldMenopauseDay 18th October- The doctors said I was normal range- but my body had had enough: Red ants were the final straw
The doctors said I was normal range- but my body had had enough
Jane Green MBE
Oct 18, 20222 min read
238
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My reasons to create the school toolkit for hypermobiity.
I did this voluntarily as I firmly believed children and young people, education staff needed this now and for future generations
SEDSConnective
May 27, 20227 min read
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