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joanna405
Feb 2, 20232 min read
Getting Connected in Crawley
On Monday 30th January 2023 the SEDSConnective workshop/demonstration day took place in Crawley, welcoming the Worshipful Mayor of...
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joanna405
Jan 20, 20231 min read
New research: Co-occurring health challenges for children and young people
The first publication on neurodivergence (Autism, ADHD, dyspraxia +) and hypermobilty conditions, such as JHS and EDS , in education...
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Jane Green MBE
Dec 31, 20224 min read
MBE - me ?
I am deeply honoured and humbled to receive an MBE for my voluntary services to neurodivergent people (autistic, dyspraxic, ADHD,...
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SEDSConnective
Dec 5, 20222 min read
The Lying Down Work in Alexander Sessions (‘Constructive Rest’) Part I
During an Alexander Technique session, usually I offer the option to lie on my teaching table. Although it is not essential to...
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SEDSConnective
Dec 1, 20222 min read
Making the Connections: A history of hypermobility research new study out! SEDSConnective webinar
SEDSConnective held an exciting webinar on 20th November 2022, where we heard from Dr Jessica Eccles, Clinical Senior Lecturer and our...
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Jane Green MBE
Oct 28, 20223 min read
Our Autumn Newsletter 2022 We are making a difference!
Welcome to our Autumn Newsletter! We are the only expert by experience and voluntary led charity for symptomatic hypermobility...
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Jane Green MBE
Oct 18, 20222 min read
WorldMenopauseDay 18th October- The doctors said I was normal range- but my body had had enough: Red ants were the final straw
The doctors said I was normal range- but my body had had enough
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SEDSConnective
Oct 3, 20222 min read
New Pain advisers for SEDSConnective
We 're delighted to introduce our 2 new pain advisers Dr David Moore, a Reader in Pain Psychology, and Bethany Donaghy a PhD Student. Dr...
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Jane Green MBE
Sep 23, 20222 min read
TAPING : useful or useless ?
by Jane Green MA Ed. It's been around for about 30 years + very useful for symptomatic hypermobile joints, weakened muscles, ligaments....
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SEDSConnective
Aug 31, 20223 min read
"It all started with a lamppost..."
Member Blog: Diane - aged 58 Carer | Teacher/outreach teacher consultant -MA (ASC) I was the kid that attended hospital a lot. Activity...
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SEDSConnective
Aug 26, 20222 min read
It’s spider mating season. Can a spider phobia ruin your health?
Jane Green would have answered “yes” to that question a year ago. But in September 2021, she decided to try and cure her fear of spiders...
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Jane Green MBE
Aug 18, 20222 min read
Did you know people with symptomatic hypermobility can often struggle with food sensitivity?
by Kelly Harris, BA dipNT rCNHC mBANT Registered Nutritionist People with symptomatic hypermobility, #SH #EDS or #HSD can often struggle...
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Jane Green MBE
Aug 1, 20222 min read
Why you need to know about EDS HSD (JHS) and symptomatic hypermobility in TES by Jane Green MA Ed.
https://www.tes.com/magazine/archive/why-you-need-know-about-eds-hsd-and-hypermobility The question is, how much longer do we have to...
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Dr Jessica Eccles
Jul 26, 20224 min read
The curious connection between hypermobility and neurodivergence
by Dr J Eccles MRCPsych MSc Ph, Patron of SEDSConnective Funded by the MRC, MQ Mental Health Research and Versus Arthritis, I led a team...
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Jane Green MBE
Jul 25, 20222 min read
We're now a charity!
We are absolutely delighted to announce that we have been granted charitable status by the Charity Commission. This will open up many...
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Jane Green MBE
Jul 21, 20222 min read
'Fluffy Supports'
BLOG POST - Greg Rix, 26, teacher from West Sussex and Trustee at www.SEDSconnective.org I sit here writing whilst my beloved is in an...
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Jane Green MBE
Jul 12, 20222 min read
The Power and Potential of Peer support
By Sue Freeman, 57 from London A rollercoaster ride: that’s how I would describe my physical and mental health since my mid 40s. Although...
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Jane Green MBE
Jul 1, 20225 min read
Accidents happen in slow time- How being labelled a hypochondriac affects all your life. I went for a little walk...
Jane Green MA Ed. What happened? July 1st 2019, I went for a little walk. My left foot sunk into a soft dip in the grass verge which...
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Jane Green MBE
Jun 13, 20222 min read
Trying to arrange care as a young person with complex needs + hEDS
By Grace Thompson, 19 near Brighton in Sussex It is normal to want independence from your parents as you grow up, and it is not always...
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SEDSConnective
May 27, 20227 min read
My reasons to create the school toolkit for hypermobiity.
I did this voluntarily as I firmly believed children and young people, education staff needed this now and for future generations
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Jane Green MBE
May 23, 20221 min read
Insoles and the Hypermobile Foot (Hypermobility HM Foot)
Advice Piece written by SEDSConnective Advisor Josh Oguntade People often do not know what happens when or why you need an insole. Very...
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Jane Green MBE
May 10, 20222 min read
Bridging the Gap
BLOG PIECE - Karen Windsor - Lymphatic Reflexologist Therapist – Mindfulness Coach. Age 41 - East Grinstead I am diagnosed with 8...
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Jane Green MBE
May 3, 20221 min read
One Big Day!
One Big day was an event hosted on 29th April 2022, for family and friend carers living in West Sussex. Hosted by Carers Support West...
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Jane Green MBE
Apr 15, 20221 min read
TES Article: Autism : 5 Adjustments Needed in your Classroom
ARTICLE published by TES Magazine - 7th April 2022 - written by Jane Green MA Ed. Educationalist and Chair of SEDSconnective, Jane Green...
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