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"Walking the path of thorns" along with hypermobility EDS and dyslexia
by Solomon Ballin, Age 27 I was diagnosed with dyslexia at 12 years old, it is said that I could also have other neurodivergence...
Jane Green MBE
Apr 30, 20242 min read
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Autism is late diagnosis over 50
From the article originally published by Reach in GetSurreyNews a few years ago : by Jane Green '"I wasn't masking at all, that's what I...
Jane Green MBE
Apr 28, 20242 min read
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Member in the news- Severe migraines and chronic illness
Natasha Green a member of SEDSConnective talks about severe migraines and how chronic illness has been a huge part of her life. She...
Jane Green MBE
Apr 20, 20241 min read
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Irritable Bowel Syndrome ? (IBS) or....SIBO?
This information sheds light on the complexities of managing IBS in individuals with symptomatic hypermobility and underscores the...
Jane Green MBE
Apr 18, 20243 min read
258
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Is joint hypermobility linked to self-reported non-recovery from COVID-19?
Image Credit: The Guardian. Photograph: Catherine Falls Commercial/Getty Images On the 19th March a study was published by BMJ Journals,...
SEDSConnective
Mar 22, 20241 min read
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Press Release - SEDSConnective Celebrates #NeurodivergenceDay on 11th March
SEDSConnective launched #NeurodivergenceDay on 11th March 2024. www.SEDSConnective.org/neurodivergenceday
SEDSConnective
Mar 11, 20242 min read
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Trying to rekindle your passion for dance!
SEDSConnective member and volunteer - Ayishah Bushara, Age 30, Sussex Let's talk about losing a piece of you, a passion, a love! Mine was...
Jane Green MBE
Jan 30, 20242 min read
250
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Press Release – SEDSConnective celebrates £20k National Lottery funding to sponsor mental health projects for the neurodivergent community
SEDSConnective celebrates £20k National Lottery funding to sponsor mental health projects for the neurodivergent community
SEDSConnective
Jan 24, 20244 min read
38
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Crossing Borders, Connecting Worlds: My Journey with Neurodivergence and Connective Tissue Disorders
Dr Kana Grace, PhD Neurodivergent neurodivergence advocate and researcher Okinawa, Japan @kanabaletti https://linktr.ee/kanagrace...
Jane Green MBE
Dec 29, 20232 min read
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Jane Green MBE
Dec 23, 20230 min read
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ARFID or MALS - It's not 'all in your head'
Median Arcuate Ligament Syndrome (MALS) – the exhausting fight to find out the rare cause of your pain when your doctors tell you it's...
Jane Green MBE
Oct 31, 20234 min read
1,407
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The Investiture of Jane Green MBE at Windsor Castle by HRH Prince William 4th October 2023
Trailblazing Advocate and Founder of SEDSConnective, Jane Green, Awarded MBE at Windsor Castle Jane Green MBE FCCT comments: “My only...
SEDSConnective
Oct 5, 20232 min read
239
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The Lying Down Work in Alexander Sessions (‘Constructive Rest’) - Part II
by Natalie Gibellini - Alexander Technique Teacher When I work with someone who is lying on the table, usually I put my hands on the back...
SEDSConnective
Aug 11, 20232 min read
138
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Connective Tissue Disorders and Autism?
by Rosie Baruah 46 Consultant in Intensive Care Medicine, University of Edinburgh Explanations are important to me. I find reassurance...
SEDSConnective
Jul 12, 20232 min read
509
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I am MORE than my history- Eating issues or not?
Having a history of any illness is hard, but when trying to advocate that your symptoms are not due to your history is even harder....
Jane Green MBE
Jun 28, 20233 min read
275
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SEDSConnective Charity Delivers 5th Year of Strong Advocacy for the Neurodivergent Community
Happy 5th Birthday to us! SEDSConnective are celebrating our demi-decade anniversary today (Monday 26 June 2023) for helping members of...
SEDSConnective
Jun 26, 20231 min read
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I co-wrote co-occuring Physical Health Challenges in Neurodivergent CYP and this is why...
by Jane Green MBE MA Ed. Chair and Founder of SEDSConnective As a child, my education was poor. I moved internationally seven times...
Jane Green MBE
May 31, 20234 min read
509
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What is MCAS? "When mast cells flare the ‘storm’ gathers pace"
These are our ‘allergy’ cells, and the first responders to
Jane Green MBE
May 12, 20233 min read
369
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'Those who most need health or social care tends to be the those who least receive it' J Tudor
by Jane Green MBE Imagine being disabled, chronically ill and perhaps even a carer for similar in your family network yet often not...
Jane Green MBE
Apr 27, 20232 min read
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Ever wondered what it's like as an Autistic Pain Researcher?
"Even though I am autistic myself, I learn so much through these interactions about the different ways autism, pain and even research...
SEDSConnective
Apr 18, 20232 min read
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Lipoedema and the Immune System
New paper on how the immune system influences lipoedema A summary of “A distinct M2 macrophage infiltrate and transcriptomic profile...
SEDSConnective
Mar 27, 20231 min read
239
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Rare or Rarely Believed? Jane's Story
Blog by Jane Green for Rare Diseases UK as part of Rare Disease Day 2023 Jane Green MBE, Chair and Founder of SEDSConnective a...
SEDSConnective
Mar 6, 20231 min read
369
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Hypermobility in physiotherapy education
My name is Katie, I’m 25 years old from East Sussex. I am currently a third year physiotherapy BSc student at the University of...
Jane Green MBE
Feb 15, 20232 min read
256
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Age warning- Time to talk about sex and intimate relations
We asked you to share the ups and downs, and ins and outs , of sex and intimate relations if you are one of us with...
joanna405
Feb 13, 20231 min read
688
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