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Oct 282 min read

What is Gastroparesis?

For the worst days, foods that will move with gravity, like shakes or liquids are generally going to be the best option.

Why does it matter? Traumatisation of patients by some clinicians

Jane Green MBE

May 262 min read

Community

Why does it matter? Traumatisation of patients by some clinicians

Warning: mentions suicidal / trauma In case you missed this paper (below) it is about traumatisation of people with hypermobility...

Our Chair on behalf of you was delighted to talk to Westminster staff about neurodivergence and hypermobilty

Jane Green MBE

May 211 min read

Community

Our Chair on behalf of you was delighted to talk to Westminster staff about neurodivergence and hypermobilty

Today our Chair Jane Green MBE was speaking on our behalf on neurodivergence and hypermobility at Westminster, London , England. Tomorrow i

Member in the news- Severe migraines and chronic illness

Jane Green MBE

Apr 201 min read

Community

Member in the news- Severe migraines and chronic illness

Natasha Green a member of SEDSConnective talks about severe migraines and how chronic illness has been a huge part of her life. She...

Trying to rekindle your passion for dance!

Jane Green MBE

Jan 302 min read

Community

Trying to rekindle your passion for dance!

SEDSConnective member and volunteer - Ayishah Bushara, Age 30, Sussex Let's talk about losing a piece of you, a passion, a love! Mine was...

Crossing Borders, Connecting Worlds: My Journey with Neurodivergence and Connective Tissue Disorders

Jane Green MBE

Dec 29, 20232 min read

Community

Crossing Borders, Connecting Worlds: My Journey with Neurodivergence and Connective Tissue Disorders

Dr Kana Grace, PhD Neurodivergent neurodivergence advocate and researcher Okinawa, Japan @kanabaletti https://linktr.ee/kanagrace...

ARFID or MALS - It's not 'all in your head'

Jane Green MBE

Oct 31, 20234 min read

Community

ARFID or MALS - It's not 'all in your head'

Median Arcuate Ligament Syndrome (MALS) – the exhausting fight to find out the rare cause of your pain when your doctors tell you it's...

I am MORE than my history- Eating issues or not?

Jane Green MBE

Jun 28, 20233 min read

Community

I am MORE than my history- Eating issues or not?

Having a history of any illness is hard, but when trying to advocate that your symptoms are not due to your history is even harder....

What is MCAS? "When mast cells flare the ‘storm’ gathers pace"

Jane Green MBE

May 12, 20233 min read

Community

What is MCAS? "When mast cells flare the ‘storm’ gathers pace"

These are our ‘allergy’ cells, and the first responders to

WorldMenopauseDay 18th October- The doctors said I was normal range- but my body had had enough: Red ants were the final straw

Jane Green MBE

Oct 18, 20222 min read

Stories

WorldMenopauseDay 18th October- The doctors said I was normal range- but my body had had enough: Red ants were the final straw

The doctors said I was normal range- but my body had had enough

Accidents happen in slow time- How being labelled a hypochondriac affects all your life. I went for a little walk...

Jane Green MBE

Jul 1, 20225 min read

health

Accidents happen in slow time- How being labelled a hypochondriac affects all your life. I went for a little walk...

Jane Green MA Ed. What happened? July 1st 2019, I went for a little walk. My left foot sunk into a soft dip in the grass verge which...

My reasons to create the school toolkit for hypermobiity.

SEDSConnective

May 27, 20227 min read

neurodivergence

My reasons to create the school toolkit for hypermobiity.

I did this voluntarily as I firmly believed children and young people, education staff needed this now and for future generations