top of page
Blog
Common searches
Search

Jane Green MBE
Feb 162 min read
RSD: The Invisible Pain of Rejection Sensitive Dysphoria
Do your emotions hit like a tidal wave? Have you ever felt an overwhelming emotional response so intense that it physically hurts? A...
2740

SEDSConnective
Feb 81 min read
New Study : Hypermobility and emotions are linked to the brain
'People with hypermobility who also feel very anxious had busier brain activity ...'
2960

Jane Green MBE
Oct 28, 20242 min read
POTS and hypovolemia
Dysautonomia is dysfunction of the autonomic nervous system, which controls essential functions like heart rate, blood pressure,...
2090

Jane Green MBE
Oct 12, 20243 min read
Autism, Anxiety and interoception
I was often told 'it was all in my head'
6740

SEDSConnective
Jul 31, 20242 min read
What is Gastroparesis?
For the worst days, foods that will move with gravity, like shakes or liquids are generally going to be the best option.
4110

Jane Green MBE
May 26, 20242 min read
Why does it matter? Traumatisation of patients by some clinicians
Warning: mentions suicidal / trauma In case you missed this paper (below) it is about traumatisation of people with hypermobility...
3270

Jane Green MBE
May 21, 20241 min read
Our Chair on behalf of you was delighted to talk to Westminster staff about neurodivergence and hypermobilty
Today our Chair Jane Green MBE was speaking on our behalf on neurodivergence and hypermobility at Westminster, London , England. Tomorrow i
660


Jane Green MBE
Apr 20, 20241 min read
Member in the news- Severe migraines and chronic illness
Natasha Green a member of SEDSConnective talks about severe migraines and how chronic illness has been a huge part of her life. She...
970


Jane Green MBE
Jan 30, 20242 min read
Trying to rekindle your passion for dance!
SEDSConnective member and volunteer - Ayishah Bushara, Age 30, Sussex Let's talk about losing a piece of you, a passion, a love! Mine was...
2450

Jane Green MBE
Dec 29, 20232 min read
Crossing Borders, Connecting Worlds: My Journey with Neurodivergence and Connective Tissue Disorders
Dr Kana Grace, PhD Neurodivergent neurodivergence advocate and researcher Okinawa, Japan @kanabaletti https://linktr.ee/kanagrace...
1970


Jane Green MBE
Oct 31, 20234 min read
ARFID or MALS - It's not 'all in your head'
Median Arcuate Ligament Syndrome (MALS) – the exhausting fight to find out the rare cause of your pain when your doctors tell you it's...
1,3110


Jane Green MBE
Jun 28, 20233 min read
I am MORE than my history- Eating issues or not?
Having a history of any illness is hard, but when trying to advocate that your symptoms are not due to your history is even harder....
2730

Jane Green MBE
May 12, 20233 min read
What is MCAS? "When mast cells flare the ‘storm’ gathers pace"
These are our ‘allergy’ cells, and the first responders to
3540


Jane Green MBE
Oct 18, 20222 min read
WorldMenopauseDay 18th October- The doctors said I was normal range- but my body had had enough: Red ants were the final straw
The doctors said I was normal range- but my body had had enough
2292


Jane Green MBE
Jul 1, 20225 min read
Accidents happen in slow time- How being labelled a hypochondriac affects all your life. I went for a little walk...
Jane Green MA Ed. What happened? July 1st 2019, I went for a little walk. My left foot sunk into a soft dip in the grass verge which...
1170


SEDSConnective
May 27, 20227 min read
My reasons to create the school toolkit for hypermobiity.
I did this voluntarily as I firmly believed children and young people, education staff needed this now and for future generations
9970
bottom of page